When it comes to any child no matter their age or if they have disabilities or not: if they need a transplant that is all that should matter. Shouldn’t it?
That is what I would think. But the Children’s Hospital of Philadelphia doesn’t think so when it comes to Amelia “Mia” Rivera. Mia has Wolf-Hirschborn syndrome, it is a complex genetic disorder mental and physical impairments. Due to this she is in need of a kidney and if she doesn’t get one she could die within the next six months to a year.
Her family is more than willing to donate a kidney to Mia themselves. So what is the hold up? The hospital is going along the lines not to directly say that they refuse to do it, but are saying that they do not recommend the toddler to have the transplant due to her disabilities.
Mia’s mom runs a blog and you can see exactly how that story plays out here
. It is such a heartfelt story and also makes you so angry at a Children’s Hospital that is there to help children and is refusing to help this child because she is mentally disabled. Since Mia’s mom posted on her blog about this story over 20,000 people from 15 different states have signed a petition to get the Hospital to give Mia her kidney that she needs.
There is so much going on with this story that is wrong. One of the other excuses that they hospital gave was that she was mentally retarded and if she got the transplant would have to take medicine for the rest of her life and who would get her to take it after her parents were gone.
I don’t know about you, but I have known many Down syndrome kids (just one of many forms of mentally disabled types) that are smarter than some of the people walking the street today. So what is this hospital coming up with their theories and excuses? I don’t know, but I think we need to show the hospital that they aren’t as powerful as they think they are and have the write to play God when it comes to who they will or will not do a transplant or services on because they have a mental disability. One parent when their child is in danger can be very strong and empowering, but when we join together as a team we can take on the world and make a change. With that said join me and sign the Petition
and get this hospital to do the right thing, and maybe a little egg on their face when it shows that the outcome is on the positive side instead of their negative thinking.