My wife and I both have psoriasis
. My wife’s is a more severe form than mine. I have mention once maybe twice about how my wife and I visited a church and one of the members of the church reacted badly to a psoriasis patch…and responded by saying to the man beside her “If we have to hold hands to pray …I am not holding hers. That spot looks hideous.”
I haven’t thought a lot about that moment for a while until today. My son walked up to me this morning, and I notice a relatively big psoriasis patch near my son’s eye and a few other around the rest of the face along with some on his back. Normally his psoriasis is mild, and we react to it and treat it but this was beyond what my wife and I saw on our own bodies let alone on his until this point. That is why the situation at that one church came flooding back.
Seeing first-hand how people can react to psoriasis in the most negative fashion, it makes me want my son to never feel the rejection by a person based upon a skin disorder that he can only manage and he can’t cure.
Yes, I realize that he one day must face these types of people and that it could strengthen him. It just hurts to think that one day some one will hurt the feelings of this child. This child is one of the most selfless, friendly and lovable children I have ever met. I see him full of self worth and benign to the idea that physical beauty even matters in this world. It is one of the qualities I love about him. He finds his way to bring joy to those that the world would deem undesirable -the mentally disabled, physically handicapped, and the economically challenged. He just goes up to them and shares his happiness and when he leaves the people are beaming a smile ear to ear.
I am so amazed because he is only 5. The thing I would hate the most is to see that brightness and joy ripped out of him because someone willfully takes advantage of his nature and rips his self worth and view of the world right out and stomps on it…to tell him he is is nothing. When the exact opposite is the truth - he is a jewel...he is unique.
But I guess that is my fear. No matter what I do to prepare my son, one day I will have to explain to him sometimes people are cruel. I have to pick up the pieces and help him put them together, knowing my son will never be the same again….
I know that he will move on and learn something (good or bad) from it...but my son will be changed forever and that is...just one father's fear.