In addition to being afflicted with Fibromyalgia syndrome, I also have a chronic and painful condition called Endometriosis. In a nutshell, it is the uterine lining, which is only supposed to grow within the uterus, growing outside of it, all over the place. From the ovaries to the intestines, it can go anywhere.
I was first diagnosed when I was 17 years old, in 2007. I began experiencing an incredible amount of pain after my menstrual cycles, and sometimes in between them. When I saw the gynecologist, he flat out looked at me and told me that I certainly did not have endometriosis. However, I wasn't taking no for an answer. When no other test yielded any results whatsoever, I went back and told him to put my mind at ease that I wanted a diagnostic laparoscopy. At first he didn't want to do it, but he eventually got a fellow doctor to perform the surgery.
Turns out, after the surgery, when I woke up, the doctor was standing over me, and sure enough said the words I already knew; "You have endometriosis." But I wasn't too sure where to go from there. Sure, I had the name of the illness that was causing all this distress and pain, but what can I do
about it? Birth control wasn't an option, because of the Fibromyalgia, it causes massive flares of that, to the point where I can't get out of bed. What could
I do? I can't do the traditional route.
I was referred to a reproductive endocrinologist, which I had seen at age 18. They gave me two options: try the medication Lupron
or get pregnant. Now, let me say, at age 18, getting pregnant was certainly the last thing on my mind. Even though I had a fiancee and we were getting married, I wasn't sure having kids so young was the greatest idea.
I couldn't get the medication, because it turned out to be $2000 a shot, and I needed two in total, and the insurance company wouldn't cover a medication that expensive, and with the way my luck had gone, there was no generic either. A couple of months later I had discovered that I was pregnant. Both joy and fear were felt that day when I found out.
The symptoms subsided for the nine months of my pregnancy, but three months after the delivery of my son, they came back rearing their ugly head worse then ever before. It has been two years since then, and I am still on the hunt for some answers. Surgeries and tests of every sort aren't yielding any results as to why the pain is so intense.
But I still press on. I have been refused hysterectomies because I only have one child. To me, that is my
choice to make, it is my body.
But sadly, many of the doctors that I have seen do not feel the same way. It's a constant battle, a struggle. It's not feasible to have another child right now. It just wouldn't be fair to the child. We don't have the money or a large enough place to live. I can barely take care of the child that I have now due to the pain. All I want is to have a small sliver of a normal life, to be able to play with my son without fear of repercussions. Should doctors have the right to refuse a hysterectomy?