Monday, 26 November 2012

  • My Son Has SPD

    I found this picture using a Google search, but this is perfect for teaching people about SPD (sensory processing disorder) along with letting people know about my son. So, I'll break it down and describe how he is.

    AJ is 5 years old. He will be 6 in January. He is, in many ways, your typical 5 year old boy. He likes guns, blocks, video games. But, he is also very much NOT your typical 5 year old boy. AJ has ADHD, ODD, and SPD.

     

    Concentration:
    AJ cannot concentrate on anything at all. He can barely read because he's too distracted by the busyness of the pictures in the easy books or too occupied by the white space in books that don't have pictures. He's also distracted with what everyone else around him is doing. If we ask him to do something, he forgets halfway through what he was supposed to be doing. 

    Noises:
    He doesn't like the vacuum at all. He claims he isn't scared of it, but he runs and screams when I turn it on. This could be a typical little-kid fear, but I'm not 100% sure. He runs as soon as he flushes the toilet because it's loud. And forget about public toilets. He will scream and shriek when they flush. Loud noises typically cause him to jump, and sometimes panic. However, if he's deeply engrossed in an activity, he might not even hear anything at all. However, if HE is the maker of these loud noises, that is perfectly fine. He will make a really high-pitched screeching noise. It seems to only bug me.

    Chewing:
    AJ ALWAYS has his hands in his mouth. He has to chew. He is allowed gum at school because he so frequently chews on his fingers, his clothes, backpack straps, pencils, markers, rulers, gluesticks (covered), anything. At home, I tell him "Hands out of your mouth" at least 3 times every 10 minutes. I try to keep his hands busy, but it doesn't always work. He will stop doing something just to chew his fingers. 

    Fine Motor skills:
    He started Occupational Therapy over the summer. Twice a week we went. He is in OT at school. They took him out of individual OT because he has improved a lot, but he is still in group OT. His handwriting has improved, he can grasp scissors correctly now. However, his cutting isn't the best. He twists and turns the scissors rather than the paper when he cuts. 

    Dressing:
    AJ can dress himself ... to an extent. He doesn't notice that his shirts are on backwards half the time because he's too focused on the materials. His socks have to be black because the white ones have a funny feel to them. He has white socks, and he will wear them if he doesn't have any black ones left, but he is obviously in discomfort if he has to wear them. Tags bug him. He likes his sleeves to be long enough to cover his hands so that he can chew on them if need be.

    Listening:
    He doesn't. Plain and simple. He has too much going on that he can't listen to what's being said. Everything I say to him, he hears about 10% of it. I have to repeat myself multiple times. This is where getting down to his level sometimes helps. I still have to focus on getting him to actually recognize what I'm saying and understand fully. Complying? Yeah ... well, his ODD gets in the way of that.

    Foods:
    He often refuses new things because he isn't sure on what the texture might be. For example, the other night, I made Chicken Alfredo for us. I didn't use fettuccine, but instead used shells. He cried for an hour because he was sure he wouldn't like them. Even though they taste the exact same as the penne he wanted me to use. But it isn't the flavor. It's the shape and the texture. He prefers smooth. However, his sister requested shells, and I obliged. Why? Because the last time I made it, I obliged his request of penne. He happily ate the chicken, and scraped off the Alfredo sauce to eat, but left the shells for absolute last. After a while, he finally agreed to eat it. 

    Touch:
    My son cringes when I go to hug him. People look at us as if we beat him. He seriously cowers when he sees you opening your arms. You have to give him advance warning, "AJ, can I hug you?". If he says no, he means it. He will cry and scream and kick if you hug him when he doesn't want to. We took pics of us as a family on the stairs of our house this Thanksgiving. Sofia was trying to hold his shoulders in a loving embrace for the picture. He whined and made all these pouty faces until she stopped touching him. He loves to be tickled, but only when he wants to be.  When he had a melt down in Walmart a few months back, he screamed bloodly hell when I picked him up to bring him to the cart in the aisle we were in. He screamed out that I was hurting him. Of course, by not telling him I was picking him up, I may have been unintentionally hurting him. Or at least irritating him. 

    Walking:
    He doesn't always walk on his tiptoes. He doesn't always WALK, either. He prefers to skip. Or bounce. Or run. Or somersault. Walking requires him to just move his legs. It doesn't allow him to move his entire body. He needs that movement (thanks, ADHD). But depending on how he's feeling, if he's having a particularly rough day with his SPD, he will walk super slow. If he's wearing something that he's slightly uncomfortable in, that's when he'll drag his feet. It allows him to not touch the fabric as much as if he were running around.

     

     

    There is a lot more to know about SPD, so if you have any questions at all, please feel free to ask me. Either as a comment here, or email me at lifeintheoddlane@gmail.com


Comments (10)

  • Colorsofthenight@xanga

    Thanks for sharing. 

     I have schizophrenia, and I have some issues.  I periodically rock or move in odd ways due to sensations filling my body.  I can smell EVERYTHING.  I couldn't before.  Noises seem to come through me sometimes.  I always misheard things, but now it's even worse because my cognitive skills have gotten worse.

    I understand some issues that your child has but not all.

  • FallenSafely@xanga

    My niece is a highly sensitive person and has a lot of these symptoms, only they're to a much lesser degree and they don't effect her school work or her ability to function. Basically yes it's annoying to find the right underwear. And yes it's annoying that she won't wear jeans or certain socks and yes it's annoying that she won't eat things textured weird and it's annoying that I can't run the vacuum when she's over and all of that, but it's just stuff we can work around. It sounds like for you it really effects your sons life and ability to function. Thanks for writing this.  

  • fadeing_hallucinations@xanga

    Very interesting post, I to have some SPD issues, co-morbid with other diagnosis. Like your son, I have a thing with socks, my parents tell me that when I was a little kid I would always complain and be in discomfort because the socks had "crinkles" on the bottom of the, I now just buy the same brand of black wool socks all the time, that don't get "crinkles" when I put my shoes on.

    Loud sounds annoy me and make me frustrated, but I can cope with them, apart from  concerts any kind of DJ or loud radios or TV, I always turn them down.

    You never mentioned how your son deals with smells. God I hate perfumes and scents on any cosmetic products. I can smell everything, weather it be someone eating peppermint gum, has used shoe polish, if they have eaten strong smelling anything. The supermarket cleaning isle is a nightmare.

    Hope your son is well, and be assured when he realizes how much work you have put into helping him and improving is quality of life, he will be forever thankful.

  • Italianmama32103@xanga

    @fadeing_hallucinations@xanga - I'm not sure why I bypassed the smells. I think it's because I can't tell when he's telling the truth, and when he's lying. Usually he yells out "EW! WHO FARTED?!", but I think that's for attention. He always claims that he can smell a fart before anyone else. Maybe he can, but I think he just enjoys potty talk. 


    He will exclaim loudly "What is that nasty smell? It's burning my nose." when we walk past someone who is wearing a ton of perfume. Again, I'm not sure if he is doing it for attention or not. 
  • TracyKVM

    My oldest and youngest are blessed with SPD.  I have a few issues with that picture ("always" walk on my toes....the use of words like "always" is annoying because every mom of a child with SPD knows there is no "always"), but it's still a nice visual representation.

    As for your son's scissor use...he actually sounds pretty good--my older "normal" daughter still does that at 9, LOL.  In fact, I didn't "learn" that was how you were supposed to cut until into my 20s.

    As for always moving, that's not necessarily ADHD.  It's a vestibular need.  He needs movement imput to calm and/or awaken other parts of the brain.  Having him sit on a gym ball or "Comfort Disc" cushion will give him biofeedback and allow him to actually concentrate better.  If you really need his attention, have him bounce on a mini-trampoline while you talk with him.  Always start off with his name and a pause.  So often we just launch into "Don't do that!" and by the time they clue in, all they hear is "Do that!" :)  Walking can definately involve the upper body, esp. if you use a weighted vest.

    It's hard getting hugs from my son in particular.  It has to be firm and intentional.  He used to like to be rolled up in a blanket, or squished, but a gentle hug or touch was an absolute not!

    My son once declared the smell of baking bread at a Subway shop to be horrid.  In a very loud voice.

    He also used to start screaming as soon as we entered Wal-Mart or one particular grocery store.  Even as an infant.  Didn't matter if he was fed, entertained, etc, if he was awake, he'd scream.  Years later he told me the lights hummed!  He also hates the sound of hangers scratching on metal rods at clothing stores, and the sound of his dad scraping his dinner plate.  He will get up and leave.

    Sometimes my son will surprise me, like when he painted the house with mud (he's tactile defensive!) and when he rolled down a hill in a garbage can at my aunt's funeral (he's gravitationally challenged!).  He no longer needs a gym ball at school, but is now pacing around the kitchen table....round and around and around.  OMG, it's distracting LOL. 

    Having kids with SPD is challenging, funny, enlightening, and in the early years, a full time job.  I became aware of my own SPD through his diagnosis (and the book "Too Bright, Too Loud....").  I am no longer clumsy, I am proprioceptively challenged!!!

  • TracyKVM

    @Colorsofthenight@xanga - 

    While I don't know alot about schizophrenia, I have done a lot of reading about low carb, high fat diets over the past year, and there is quite a bit of evidence that it can help those with schizophrenia.  I know of several people who follow LCHF for bi-polar, anxiety, depression, as well as seizures.  I was wondering if you've tried this?

  • Colorsofthenight@xanga
  • lonelystrangergirl@xanga

    There are so many disorders out there now a days.

    I'm a little more sensitive than others, but I don't think anything is wrong with me. And, if my children came out more sensitive, I wouldn't think anything was wrong with them still.

    No pills. No diagnosis.

    I'm not saying that these things don't exist--- just that I think it's weird that there are so many new things children are afflicted with these days.

    I'm starting to feel like a lot of people (not everyone,) gets frustrated and starts looking for titles that would explain why their children are difficult.

    But, can't someone be difficult or sensitive or funny without an affliction?

  • IdioticWisdoms@xanga

    I actually recently took a whole bunch of training classes for children with special needs and SPD was actually mentioned. Interesting fact-did you know that for these children what one of the most distracting things can be? Fluorescent lighting. To a person with normal sensory capabilities, we don't notice that fluorescent lights actually flash on and off several times a second. Many children with SPD actually can see it every time the light flashes on and off and it is extremely distracting and disconcerting for them! Just something interesting I learned figured I would share it since it seemed related to the entry! A lot of people don't even know that something like this exists so it's great you're putting it out there!

  • Italianmama32103@xanga

    @lonelystrangergirl@xanga - Some are. My oldest, for example, is an instigator. She has nothing "wrong" with her, per se. She's just difficult. 


    For the most part, it's not anything to do with wanting to put a label on him. It's just what it is. He is much more sensitive, much more difficult than your typical child. It's easier to have a title for his behavior, if only to let people know that this is not something he can control. Not sure if I've portrayed that accurately, or if I made it worse at this point.
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