Thursday, 01 November 2012

  • First Visit With RE



    We had our first visit with the Reproductive Endocrinologist. I really liked him, at least a whole lot more than I like my OB/GYN. He took my concerns seriously, especially about my menstrual pain. He didn't just tell me that it's normal and to just take a couple ibuprofen. He wants to find out what is causing me so much pain, and he thinks it is related to our infertility (you would think my OB/GYN could have put that together). The RE took a look at my HSG films and saw irregularities that the radiologist and my OB didn't notice. They both said it was a normal study. Long story short, my RE thinks I have endometriosis, and we are going to do a laparascopy soon.

    I have been wanting a confirmation of endo from my OB for the 6 years that I have been seeing him! I really think he just didn't take my pain seriously, which makes me really angry. I know, I know, I should have found a new doctor years ago. I really have no excuse other than I hate going to new doctors, because you never know who/what you're going to get. I would have been way better off, and if/when we do get pregnant I plan to go to my sister's doctor.

    I have also started reading Endometriosis: A Key To Healing and Fertility Through Nutrition. I know I haven't been officially diagnosed with it, but I really think I have it, and it won't hurt to start trying to heal it naturally. I've read about the endometriosis diet before, and I've tried to make changes, but I've been kind of a slacker about it. I am going to start doing it more seriously. The hardest part for me is cutting out all wheat, dairy, caffeine, and most sugar. It really makes eating out and eating at other people's houses/parties more difficult, but it will be worth it if it helps with my monthly pain and/or helps us get pregnant. 

    Have you gone to a Reproductive Endocrinologist? Was it a good experience? Have you had any success with the endometriosis diet?



    image source

Comments (11)

  • WaitingToShrug@xanga

    What you're doing sounds like paleo/primal, and you wouldn't believe the stories of couples who have tried it and become fertile. Best of luck to you- I don't have endometriosis, but my sister and I both noticed positive changes in our cycles after cutting out wheat and other grains. 

  • cobeeisgone@xanga
    @WaitingToShrug - I have noticed the similarities to going paleo. I don't know if I'm ready to change my diet that drastically. It's already hard enough with what I have to give up. It is definitely something to consider though.
  • WaitingToShrug@xanga

    @cobeeisgone@xanga - It is pretty drastic! It's a serious change. You might look at some paleo blogs for ideas about recipes, even if you aren't planning on doing the full paleo diet. There are a lot of good wheat-free, sugar-free, dairy-free recipes out there. 

  • JennCorter

    @cobeeisgone@xanga - Hi there! When I was 19 I saw an RE because I have been diagnosed with Endometriosis. It was an overall good experience, but at the time they told me to either get pregnant or go on Lupron, but the medicine was out of the question at the time because of it's costs. (Last time I checked it was like $2000 a shot). So my fiancee and I ended up getting pregnant, and I had my son in 2010. Since then, I've had an incredible amount of pain due to the Endo, so I think I may read that book that you mentioned above! Best of luck to you!

  • cobeeisgone@xanga
    @JennCorter - I don't know how you feel about Eastern medicine. Trust me, I was very skeptical...but acupuncture has helped a lot with my menstrual pain. My period also isn't as long or heavy as it was before. It may not be for everyone, but it has helped me way more than I thought possible. I actually went hoping it would help me get pregnant, but the side effect of milder cramps/periods was a bonus!
  • cobeeisgone@xanga
    @WaitingToShrug - thanks! I do like the idea of going paleo, maybe eventually.
    How long have you been paleo? I just don't know that I could stick with it forever. I have very little self-control when it comes to food.
  • sarahsmurfette@xanga

    @JennCorter - I can't believe a doctor instructed you to get pregnant at 19 because of endometriosis. Wow.

  • WaitingToShrug@xanga

    @cobeeisgone@xanga - Hmm... I started around March of this year, I think. Sometimes I am more compliant than others, though. For example, at the moment I am okay with eating rice and certain types of dairy. 

    In (I think) April, my husband and I did a Whole30, which is a 30 day commitment to do super strict paleo- no grains, no dairy, no legumes, no soy, no added sugars (even honey and maple syrup). That's nice to do, just to see how the different foods affect your body, but as the creators like to point out, it's a Whole 30, not a Whole365... you don't have to be perfect all the time! The Primal Blueprint recommends the 80/20 principle- eat primally 80% of the time to get the most benefits, use the 20% to keep yourself from going insane!My dad is the one who sticks to it best... he even ditched beer in favor of gluten-free cider because he was so thrilled that his acid reflux stopped. If you want some links to some helpful sites (even if you aren't going paleo, just for the recipes), please feel free to message me. I hope that switching up your diet helps with your endometriosis!
  • Pollypinks@xanga

    I'm hip with the acupuncture, but not from an American Chiropractor, but from a Chinese or Japanese MD.  I've had experiences with both, and the Chinese doctor had a full MD with a specialty in acupuncture from China, and I couldn't believe the relief I got.

  • Nanu2Lose@xanga

    the endo diet sounds hard core.  I myself have been on a low-carb diet (a little relaxed the past few weeks, but still) and there are a bajillion health benefits to it.  I have had incredibly painful periods in the past, and even now I have a painful first day on it, and I'm like a zombie the day before until it's done.  It freaking SUCKS.  That's awesome that you're going to see an RE and the whole OB not giving a crap about your concerns is precisely why I hate going to see the obgyn I mean they NEVER listen to me, ever.  like they're all automatically trained to tell you to take ib profen or birth control for whatever.  It's so frustrating.  Good luck with everything!!

  • TracyKVM

    I've been doing low carb/high fat for a year.  I'm not super strict, but make it a priority.  However, November has been a hard month since two of my kids had birthdays....and wouldn't you know it....I've been having horrible PMS, sore breasts, the whole works.  I used to have it bad before going LCHF, and this month is even more proof I need to be LCHF.  In particular, drop wheat and sugar (for some, even many fruits are off limits, but berries, in moderation, are okay).  Read "Wheat Belly" by Dr William Davis.  I do allow dairy--many paleo communities do, although the fresh, raw milk from a nomadic, grass fed animal is way different than the "milk" sold in stores.  But, it's a concession I make to be able to stick with the rest of the plan  ( I don't use milk less than 10% fat, yoghurt is at least 3%, and no low fat anything).

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  • cobeeisgone@xanga
    • From: cobeeisgone@xanga
    • Name: cobeeisgone
    • About Me: I have been married for 2 years...and we have been trying to conceive for over a year, with no success. It has been a very frustrating journey so far. I'm really trying not to lose hope!
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