Friday, 28 January 2011

  • My Thoughts On Adult Day Care


    I am an occupational therapy student, and this week, I started my level one fieldwork.  Tuesdays, I get to go to an adult daycare facility and spend the day with a dozen or so older adults with the start of dementia.  It's heartbreaking to think that just a few years ago, these folks were all independent and "with it", and now some of them are hard to understand or make no sense at all.

    The day starts when their family or Access Transport brings them to the center, which is the first floor of a large, old house.  They have coffee and can chat with each other until most of them are there.  Then, we do exercises (while sitting down) and do a few other activities before lunch.

    After lunch, there's a little "down time" before more activities.  When I was there, we played a variation on Bingo, had an older woman come in and play piano with us, and told some jokes.  It was structured enough but felt relaxed, too.

    I can't imagine what it must be like for the families of these folks.  One woman looks to be in her early sixties, but if you ask her a question, she can't respond with an appropriate answer.  Another, older woman was so happy to see her husband at the end of the day, and he looked at her with so much love, but I can't imagine the heartbreak of a wife who doesn't always remember who you are.

    We also had the requisite older men who were quite happy to have a cute, young, college girl around.  It's a really great opportunity for me to learn more about people with dementia and exercise my OT skills.

    My grandparents live in different cities, and they're all still active members of their community, so caring for people with dementia is something I've never experienced.  And I hope I never have to experience it in my family, but I know that the statistics aren't that good.

    So I hope that if I ever know someone who needs care, that he or she will be able to access the kind of resources, like this adult daycare center, where he or she can be treated with dignity and love and kept socially active for as long as possible.

    Are you taking care of a loved one with dementia?  Do you take him or her to an adult daycare center, or does that person stay at home most of the day?

    If not, have you thought about this possibility as your parents age?  Would you send them to "adult day care" or would you care for them at home? What would you want your kids to do for you?

Comments (7)

  • ange_lae@xanga

    I would want my kids to euthanise me. I can't even imagine a life where I don't know what the hell is going on most of the time and can't even take care of myself. Let me pass on to something better!!

  • kristinabean@xanga

    We took care of my great grandmother in her own home for as long as we could. Then she moved in with my uncle, and when his health (and her worsening Alzheimer's) prevented him from caring for her at home safely, we moved her into a wonderful living facility. She likes her roommate, and someone from our family is with her every day. In addition, we don't have to worry about her sneaking off at night. 


    (This happened once, and was the deciding factor in putting her in a home. She got half a mile down the road, and tried to hitch a ride "home" [which she said was in Buffalo, where she lived as a child--we're in Ohio] with a neighbor. Fortunately, he knew who she was & brought her back to my uncle's.)
  • disorderedpersonality@xanga

    @kristinabean@xanga - Wow, you're lucky she tried to hitch a ride from a neighbor. Yay happy endings!

    Both of my great-grandmothers were initially cared for by family members within their own homes; one actually lived right next door to my grandparents, us kids used to go over there to keep her company sometimes. One day she had a stroke and busted her head on a metal trash can when she fell, and my grandpa felt so guilty about not being there when it happened he had her moved to an assisted living facility where she was miserable for two years before she passed away. Every time we visited her, she begged us to take her back home; it was so heartbreaking, I hadn't visited her in months when she passed away because I just couldn't handle it. My other great-grandma moved in with her son when she was diagnosed with Alzheimer's, but also wanted to go back home; one night she left and tried to walk home, but was hit by a car and the driver didn't even stop for her. She was found the next day in a ditch and had to have her leg amputated, and was mostly bedridden for the next few years until she passed away. Both of these women really hated losing their independence, and it was hard on our families trying to do what we thought was best for them even when it went against their wishes :(
  • Katja88@xanga

    @kristinabean@xanga - I'm so glad she got back safely, and that she ended up living somewhere she liked.  Talking to some of the families, safety is their primary concern and motivation.

  • Katja88@xanga

    @disorderedpersonality@xanga - Oh dear!  That's really sad, on both accounts.  It has to be such a terrible thing if you still have much mind left, knowing you're being "put away"...

  • Katja88@xanga

    @ange_lae@xanga - I'm inclined to agree, actually.  My professor says she hopes that if her mind ever goes, she hopes she's at least one of the sweet, complacent old ladies, because she'd get better care.  No one even really wants you if you're mean and combatant.  Allowing euthanasia as a clause in a living will seems more humane, almost.

  • raspberryjade@xanga

    my great grandma suffered from dementia - it was really sad and still makes me upset thinking about it even though she died 6 years ago.


    I hope my family (or anyones family for that matter) doesn't have to go through that again - the one good side is the person doesn't know they're hurting their family...
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