Friday, 19 March 2010

  • Struggled to Get Pregnant, But Now Pregnant and Worry Never Ends...


    I went in to see the my OB in the morning for my 12 week check up, heartbeat was fine, everything felt fine. Later that afternoon, I went to the Center for Perinatal Medicine to have a first trimester screening.

    I was so elated when I saw my little one swishing and somersaulting in my belly. The sonographer even amplified the heartbeat for me & was able to record it on my iPhone. She took some pictures and went out the door to get the doctor (which I was expecting)...so no panic yet.

    When the actual doctor came in, she was nice, polite & calm....but very "matter-of-factly". My nuchal translucency measurement was a little higher than normal. 1-3mm being normal and very low risk of down syndrome. Less than 2.5 was even better, a .2% risk. However mine read between 3.1-3.4mm. She shows me a chart and I see the risk is still only 3.7%. So I have a bit of panic inside me and of course anxiety.

    I know it's her job to just tell me the facts, and offers me a CVS test or Amnio if I must know the results. I ask her if she has seen babies turn out to be normal with numbers like this and she says absolutely, but it's not a guarantee. It just sounded so negative, while on the same chart she shows me that the percentage of babies born alive and well in the range of numbers like mine were 93%. Why does she have to say of "oh you have about a 3% chance or so with having a baby with down syndrome" instead of saying, "Well there's a 93% chance your baby will be normal, alive and well". Again, I know, doctors are all about facts and numbers.

    I'm not even suggesting she was rude, actually quite nice but the words just seem so harsh after going through IVF. It has taken me so long to get where I am. I can probably come to terms if there is something wrong with my baby, but I feel like sometimes these new technologies of detecting something wrong can be a curse.

    I'm beginning to know what it feels like to be a parent that worries already. I just want a healthy and happy baby. I will accept what God gives me, but from day one....it just seems like everything has been a struggle. Everyone keeps telling me to enjoy the pregnancy, all I seem to have now is worry and anxiety. I still have to wait for my initial blood test results and then go back in a couple weeks for a second one so they can give me a better ratio of the chances of anything being possibly wrong. This whole thing is a gamble, which I knew from day one the day we decided to take the invitro route.

    Don't get me wrong, I'm very thankful to have gotten pregnant and I know in the end this will all be worth it. Just wish I had some peace of mind. My husband doesn't seem to concerned about the numbers. He's and engineer and the stats tell him we're still in a pretty good position, we may not have the lowest risk, but the risk still seems low. He says it's not like we're in the 50-80% range. I guess we'll have a better idea when my bloodwork comes back if we should do any invasive diagnostic testing....which I want to avoid.

    Nerve-wracking!! This whole process is nerve-wracking....I know I'm not the only one going through this. Would love to hear other stories or comments.

    Did you have any worries or struggles in getting pregnancy or during your pregnancy?

Comments (19)

  • SeeBeeWrite@xanga

    Of course. I think all women must worry at some point about their pregnancies.

    I had trouble staying pregnant because of genetic issues, so I've run the gamut there. I worried the whole time.

  • milfncookies@xanga

    I was horrified of my baby having birth defects. Due to my previous doctors making some serious mistakes in my checkups I was told that my son would probably have Downs Syndrome and possibly other defects as well. It was an emotional catastrophe, there's no way I could terminate a pregnancy, but I really couldn't see myself raising a disabled child--I'd blame myself, I'd blame my husband, I wouldn't be able to provide well enough, and endless other worries. When my second doctor told me that there had been mistakes made by my first doctor I was BEYOND relieved. While everyone tells you to just relax, enjoy your time before you become a parent, don't stress because it's bad for the baby, blah blah blah, it's really impossible not to. Handle the worries as best you can, and take them as a sign of your love for your baby. :)

  • gwacemom

    We had a worry during our first ultrasound. There was an issue with one of her kidneys. That sent us to the ultrasound from hell. In the end we never once heard the words "Down syndrome". Our beautiful little girl was born three weeks early and it was four hours after her birth we first heard the words; "your daughter has Down syndrome".


    I am thankful that I didn't know prior for just the reasons you stated. I would have stressed my entire pregnancy afraid of the "what ifs". Emily is now three and the light of our world.  Much like milfncookies stated; handle things to the best of your abilities. It is indeed a sign of how much you love your baby.


    Good luck to you and if you have any questions about the possible diagnosis of Down syndrome, don't hesitate to message me.

  • AWaters@xanga

    I'm 13 weeks pregnant and my dr. is pushing me to get AFP testing. I decided against ALL testing! I will love my baby no matter what he/she comes out like. And I have no need to stress out the whole time!! 

  • happygirl7798@xanga

    I worried throughout my last pregnancy.  It took awhile and a miscarriage before I got pregnant.  The first trimester was a roller coaster of emotions.  Then after that I graduated from nursing school and began working as an labor and delivery nurse.  Nothing messes with your head more than seeing everything that can go wrong on a weekly basis.  It got to the point that I was just praying for 39 weeks to come so I could be induced and just hold my baby.  He turned out just fine and afterwards I felt a little silly worrying so much.  I think it hard not to when you have struggled to get pregnant.  You have had so many disappointments that you are always looking for the next one.

  • Luv2BMama@xanga

    With all of my pregnancies, I decided against any testing, besides a basic ultrasound.  The way I saw it, I wasn't going to do anything but stress and worry if I found out anything was wrong, so why find out until the baby was born?  My aunt was told that her youngest was likely to have Downs Syndrome, and he was born healthy.  I had a friend who was told at an ultrasound that their daughter might have something wrong with her brain (can't remember what they called it), but the doctor even commented that it was too bad that it was too late for an abortion, or he might recommend one.  Guess what, they switched doctors, first of all, and their daughter was born perfectly healthy!  Try not to stress, though that's not easy.  You will love your baby no matter what, and more than likely, he or she will be healthy!

  • elrobinson57@xanga

    I understand your worry.
    Just remember to be constantly praying about it and have family and members of your church (if you attend) pray as well. Have faith that everything will be okay. =] Rest assured, you have many people (inculding me) hopeing and praying or the best.


    E

  • itsjustamething@xanga

    Oh my could i write a novel on the "worries and anticipations" of a very LONG wanted pregnancy.
    I had about 4 miscarriages, plus my ovary taken out. At 37, I had just about given up on the idea of kids and I so much wanted children. Then all of a sudden, There I was again, at the OB's office.
    Nope. Another miscarriage. That just made me determined strangely enough and at that age, I knew that I didn't have allot time.
    I did get pregnant again very quickly. This time, FOR THE FIRST TIME. there was a heart beat. I think that I about fell off the exam table. But, that didn't mean by far I could relax.
    They they did the "marker test"; It came back 1 in 17 that my baby had downs. Amniocentesis was highly recommended. I did get it. Not that I would have done anything to my baby had she been downs. Turned out that this baby was a healthy girl. (after the 2 grueling weeks waiting for the amnio). At 39 weeks, after a "perfect" pregnancy that I was basically waiting the whole time for something to go wrong, I had a baby girl in my arms that even got a 10 on the apgar.
    So, my best advice to you is to please try and keep an upbeat attitude. I didn't see how old you were, but, it isn't til age 35 they really worry about downs. (and they are wonderful babies/kids/adults as well). This what I did with those numbers. I thought of myself in Vegas. If I had those odds in Vegas, I would bet. Yes you know it. 1 in 17 is pretty grim til you put it in Vegas. It got my though those 2 weeks.
    The numbers you mentioned and of course, I am not a Dr nor do I know your history, just can definitely relate to the worries and concerns, you are going to have a healthy happy baby. Those measurements could be off due to the date of conception being off just a day or 2.
    So, the very best to you and God Bless you and your baby.
    Sorry so long and this was the best I could shorten it. There is more, but, that is another story.

  • key19@xanga

    I have never been pregnant, but I can sympathize. Gynos & OBGYN's (and most doctors actually) are so matter-of-fact. I recently had an issue at the gyn and it wasn't called to my attention THREE months after my annual. Then my appointment to get it taken care of was rescheduled six times. To them, it's an every day, no big deal type of thing. To me, it's huge. They're so apathetic...when you're so concerned. Good luck!

  • RebekahRo@xanga

    I have a great three year old (perfectly healthy), and worried non-stop through the whole pregnancy. About... well anything I could think of to worry about! :)


    Then, in my second pregnancy, I went in for my four month sono, and not only had the baby passed away, but from the measurements, it seems she'd been deceased for a whole month.


    I was devastated.


    Now, I'm in my sixth month of my third pregnancy. And I thought I'd be out of my mind with worry at this point. However, after our miscarriage, I was diagnosed with an anxiety disorder through a chain of events that never would have occured without our loss. That child saved my sanity, and I will be forever grateful.


    I'm on medication approved for taking during pregnancy this time around, and my fears, although they exist, are so much easier to put into perspective.


    I am able now to be thankful for every day that I can spend with this child, and though I don't ever want to have to let her go, I know that life is uncertain for anyone - none of us is promised more than this very moment. I can either spend this moment in fear or appreciation for this life within me, and as often as possible, I am going to choose to appreciate.


    Having a three year old has also taught me that it doesn't get easier! You worry for them all the time. A poet (I can't remember who it was now) once said that motherhood was like having your heart constantly walking around outside of your body, and I wholeheartedly agree.


    If you can learn to appreciate each moment now (within reason - worries still come, but you're in control, not the worry!), you will be light years ahead.


    You are a good Momma! Keep it up, girl! I'm thinking really good thoughts for you and your little one :) Your child matters to me, too :)

  • bebe_nxnx@xanga

    Hi there,


    Congratulations! You're a mom! It's normal to be scared when you're pregnant. I was afraid of having a stillbirth and DS when I got pregnant with my first child. It's a never ending feeling-- being scared... I had the same feeling too when I had my first baby, but believe me when I say that you should enjoy your pregnancy instead of worrying too much. I miss being pregnant to be honest-- it's like the suspense part of a movie, and then when you reach the end-- the part where you see your baby for the first time... face-to-face, you'll feel the most rewarding feeling you've never felt before.. and you'll be happy that you finally have your baby and you can't believe that you had him inside of you the whole time.


    It's a scary thing to think that you are responsible for bringing a person into this world, and even though the baby is growing inside of you, it still feels like your baby is a stranger. Don't worry too much... It's perfectly understandable that as a mother, you want to provide the best for your baby because that's what our instinct is like. We want to protect our child no matter what.Try to gather more information through books and websites and you'll feel better little by little. Because the more you know about something, the more confident you'll get.


    And also, even if you're not religious, it helps when you pray. Believe that there is a Higher Power among us and that God doesn't want his children to suffer....


    Take care and enjoy 30+ plus weeks of your pregnancy.


    Wish you all the best.

  • Alyxandri@xanga

    I can imagine that it is very stressful... Just the kinds of foods you eat can have such a large affect on your baby's development. It is ridiculous how much pressure pregnant women are under.

    Just try to do everything right and not stress out too much. If anything, worrying too much will do more harm than good. Try to relax... Don't freak out until you have to.

  • xlostinthecityx@xanga

    congrats!

    just relax~ everything is gonna be fine!
  • AbsolutelyNormalChaos61308@xanga

    I was told after my 2nd trimester screening that my daughter had a high chance of having down syndrome. I was afraid of the risk to my baby to get Amnio, and I worried myself SICK until the day she was born-- and wouldn't you know it... perfectly healthy, even after all that worry. =P


    Also-- Gwacemom (who commented above) was a huge help to me when I was going through the heartbreaking emotional roller coaster worrying about if my daughter would have DS or not. I learned from her that I would love my daughter unconditionally no matter what, and that DS wasn't a death sentence. I was lucky that my little Lucy doesn't have DS.. but I also have embraced the DS community so much, and am trying my best to spread awareness.
    I'll be thinking about you. But don't worry too much. Those tests tend to have a lot of "false positives"... and are normally wrong. I have experienced it firsthand.
    Hang in there. Prayers being sent your way
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  • babykittytara@xanga

    Just so you know, those tests are pretty...meh.  I've known a lot of people who get told "Your baby *WILL* have -long list of complications/diseases-" based on the test results and the baby is born 100% 'normal'.  In my opinion, those things are a joke at this point, and i never bothered to have them done for that reason.

  • Erika_Steele@xanga

    I think because of my science background, I like your husband, did not worry and thought that the odds were in my favor that I would have a physical, mentally, emotionally, and developmentally normal child.  I could tell by looking at the ultrasounds that he was developing normal and elected not to have anything invasive done.  I will do the same with my next child.  I think I would even chose to do the same thing if there were problems with the ultrasound.  Knowing my child may have problems wouldn't change the fact that I was going to have them, love them, and guide them the best I can through living in this world.

    The only time I worried when I was pregnant was when I had to have surgery to remove an ovarian cyst.  I was terrified for my son, but he made it through safely.  After the operation, I stopped worrying and knew that my son was going to be fine.I think that you should do whatever you need to do to assure yourself that your baby is going to be healthy.  If that means getting tests done, get them done. 

  • Mkat

    Wow, Thank you all you ladies for your stories & kind words. The doctor from the perinatal clinic finally called me back yesterday with my blood test results. After my blood test, my chances went down to less than 1%. She did offer other testing for other syndromes and that if I still wanted a yes or no answer that she would still do the amnio up to 20 weeks.


    After having the time on the weekend to think about it, I told her...I went through 2 years trying to concieve & 3 failed IUI's. After my first round of invitro I am very lucky and blessed to have gotten pregnant.


    I could never terminate a pregnancy because of down syndrome or anything else for that matter. I didn't see myself as raising a child with disabilities, but if it were the case, so be it. I see it as it is what it is. I pray for a happy healthy baby but will accept what will be.


    My best to you all!

  • Mkat

    @RebekahRo@xanga - So sorry to hear of your loss of the second child. So happy you made it to month 6 of your third pregnancy. I guess the worry will never stop, I'm just beginning to realize what it is like to be a parent....very early on. You are right, I just have to take it moment by moment & enjoy it. My thoughts are with you too, as well as all mothers who have doubts & concerns.

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  • Mkat
    • From: Mkat
    • Name: Mkat
    • About Me: I'm 33, happily married and expecting my first child October 2010. I have an interior design background & love the modern look. Artwork & paintings are also of interest, as well as health, nutrition & fitness.
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