Saturday, 17 October 2009

  • Organ Donor Myths

    Down syndrome and organ donation

    When I wrote my apparent second blog on organ donation (the one from a year or so ago I completely forgot about) I never expected it to end up in a controversy. I had been talking with Misty for some time and knew her story. To put it bluntly, without someone's unselfish gift, Misty would not be here today bringing joy to many of us on xanga.

    Misty brought it to my attention that she wanted to do something similar to Dan's "Save the Boobs" campaign only with organ donation as the focus. I thought it was a great idea and jumped in with both feet trying to help in any way that I could. I have written a few blogs about the importance of organ donation as has she.

    I have never been more surprised at some of the responses that we have received between the two of us and the different blogs. It was decided that another blog was in order to perhaps debunk some of the erroneous thoughts people have about organ donation. I realize that some people simply don't want to donate their organs and while I don't understand it, I respect their right to make that decision. What I am attempting to do with this blog is to clear up some of the misconceptions that have been mentioned over the past few days.

    I am in no way an expert on organ donation. I have had a family member receive a kidney from another family member and that pretty much sums up my personal experience. However, it took me less than five minutes to find the documentation that dispelled many of the reasons that I had heard for not being an organ donor.

    Myth 1: The donor family is left with a huge hospital bill following the harvesting of the organs.

    I read over many sites and each one stated that this was simply not the case. I will provide links at the end of this post. What I did learn is that some people do not realize that the costs incurred PRIOR to giving consent to organ donation is indeed a charge that your family will incur. What this means is; any life saving measures that were being done will remain the responsibility of the family. Upon realizing that there is nothing more that can be done and the family grants consent to harvest the organs the charges are no longer the families concern. Often times there is a period of time that the patient is kept alive by machines to ensure that the organs can be harvested. This is NOT something the donor's family is billed for.

    Myth 2: If doctors realize I am an organ donor, they will not do everything possible to save me.

    Really people? Now, I will fully admit that I have run into my share of doctors that are idiots, but not a single one of them would allow someone to die simply because they were an organ donor. Can someone please explain to me how exactly the doctor that is working to save your life is going to find that extra five minutes to see your drivers license and note that you have an organ sticker on it? I have been in emergency situations with family members. I can promise you that the doctors and nurses are not taking the time to go through your clothes to find out who you are or if you are a donor. When my step father was brought in after he collapsed at his home, a hospital representative came to US to get the necessary personal information so that they could admit him. My ex husband is a first responder and I questioned him about protocol. According to him, their job is to get the person stable enough for transport. If it is a situation such as a car accident, they worry about getting the people out of the car and into the ambulance. It is the job of the officers on the scene to find out identity and such. Unlike the medical shows we watch on television, the officers are not rushing to the hospital to give the identification to the doctors. They are seeking out the family members so that they can be there with their loved ones. As a side note, my step father passed away that night in the hospital. During the almost four hours they worked on him we were never once asked about organ donation. In spite of what many believe, doctors are not simply standing around waiting to harvest your organs.

    Myth 3: Organ donation disfigures the body and an open casket is no longer an option.

    This is probably the one myth that actually makes a little sense to me. The fact is that the organs are removed surgically and there is no changes made to the outer body. An open casket is most assuredly an option if that is what the family desires.

    There are actually a few more myths that were listed on the links that I read. These three were the ones that I have seen most often during these discussions and that is why I focused on them. While I am smart enough to realize that some people are simply not going to change their minds regarding organ donation, my sincere hope is that at the least I have people talking. If you are talking then others are hearing about organ donation. If they are hearing perhaps they will take the time to seek out their own information. With that information there is hope that a few will decide that organ donation makes sense for them.

    Organ donation makes sense for me. I want my children to understand that there are selfless gifts in life and this is one of them. I will be gone from this earth, but I will leave a few pieces of me so that others can continue on their journey. I can't think of a better way to leave my mark on this world.

    Links:

    http://www.unos.org/News/myths.asp

    http://www.donatelifeny.org/organ/o_myth.html

    http://www.mayoclinic.com/health/organ-donation/FL00077

     

Comments (15)

  • draco1531@xanga

    Thanks for clearing up a few of the myths. 

  • careegroup@xanga

    It also should be noted that when people are embalmed (for open casket funerals) their bodies are put through a lot anyways.  All of the organs are punctured many times and all body fluid is drained out and replaced withe the embalming fluid.  This is done to keep any gases from escaping from the body.  The eyes are sewn shut (to keep them from opening up) and the mouth is also sewn shut and the cheeks stuffed with cotton to fill out the face and give it a more natural look. 


    It makes sense to donate our organs because it isn't like they are left intact in our bodies anyways.

  • gwacemom

    @careegroup@xanga - Excellent points, thanks so much for getting that information out there.

  • princess_riceball@xanga

    I know the first one is a myth for a fact, when my grandmother donated her organs everything was paid for.  They even returned her ashes to us in a really nice little black box and gave us a medallion commemorating what she had done.  As for myth 3, that never crossed my mind.  My grandmother never wanted a viewing anyway and I share her same sentiment. 

  • gwacemom

    @princess_riceball@xanga - Thank you so much for sharing your experience. You would be shocked at how many people are under the misconception that the donor family is responsible for the costs. I am sorry for the loss of your grandmother, but beyond thrilled that she was an organ donor.

  • iiinfinitesimal@xanga

    good post. and i don't know why people want open caskets anyway... it seems creepy to me.

  • averyswife@xanga

    @iiinfinitesimal@xanga - Ditto; I've been to several funerals with open caskets and I make every effort to avoid seeing the body.  I don't want to remember the person dead, I'd much rather remember them alive and well!  It does seem creepy...especially since the body is just a shell.  But I suppose some people need that kind of closure.


    Excellent post.  I'll never understand why some people don't want to be organ donors.  You don't need 'em where you're going!

  • greenwoman@xanga

    I recently wrote a similar post on another persons blog about organ donations and my hope in writing this is that if there is one person that is unsure this pushes them in the direction of donation.


    Please if you are unsure read my comment.


    To donate an acutal organ and not tissue you must be brain dead and on life support. If you have already passed and your body has been with out oxygen for more then a few minutes then you are only able to donate tissue (cartalige and heart valves are most common). Which means your brain would not be sending or recieving messages and your family would have to chose to take you off life support before the thought of donation of an organ even came up. Then if you are an organ donor they try to find a recipient right away. They will then let your body go and harvest the organs. They transfer the organs almost imediatly most of the time. Tissue donation is different. Some of it can be saved until they find some one who needs it (there is always some one of the organ and tissue donor list who can use what ever).


    We donated my sons heart valves and knee cartalige. When he passed it helped me .0001% knowing that his death saved some other parents from going through what I had to go through.


    After my son died we gave away all of his baby items to families in need. The family I gave his swing two has a little boy who loves his swing but his broke and because of medical expenses they could not afford a new one. Turns out their son is going in to have heart valve replacement this month! If he they can find a human donor then the valves will grow with him, if not he will have to have the surgery every 7-8 years.


    If any one would like further information on organ donation or is unsure and would like to talk to some one who is pro donation and has been through the process please feel free to contact me.

  • greenwoman@xanga

    By the way we absolutley incured no costs, not a single one from the hospital or from the donation.

  • gwacemom

    @greenwoman@xanga - You are an amazing woman. Thank you so much for sharing your story. My daughter has a congenital heart defect now repaired. Because of her we have met many children in need of replacement valves. Human donors are always the best choice. I know one child that has had to have his valves replaced twice now due to outgrowing them. I am so sorry about the loss of  your son.

  • aliyagator@xanga

    I'm a 100% supporter of Organ Donation.  I've experienced the receiving end.  And I only wish I could contact the family every month to thank them for the extra 6 1/2 years I had with my dad because they chose to donate a liver.

    When my dad died (from another complication) we donated all we could.  Because he was so sick it was only his corneas and something else I don't recall.  But I am certain that someone can see today because of that.  And I'd betcha that they're thankful for it!

  • azure_clarity@lovelyish

    Wait, so you STILL get buried if you're an organ donor? I thought they used as much of your body as they could, not just the organs, and threw away whatever they couldn't use.

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  • pacapao@xanga

    I think I will donate mine too 


     

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  • gwacemom
    • From: gwacemom
    • Name: Ange
    • About Me: I am a mom to eight. 5 by birth, 3 by marriage. I am trying to rediscover myself. Writing has been a big help. I am passionate about Down syndrome awareness as well as CHD (congenital heart defects). Have a question about either, feel free to ask. If I don't have the answer, I will by nightfall. The beautiful girl in the picture is why I am so passionate about the two subjects. She is the face of Down syndrome. Not what you expected, is it?
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