Wednesday, 15 July 2009
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Apparently, I am an "Autisiphobe"
So, there is a nasty little war going on over at Autisible.com between someone with HFA and a dear blogger bud of mine. I stepped in to say I will miss this person who has always been very supportive of me and my efforts to help my son make the most of his life.
For that, I have been called an "autisphobe" and accused of "extreme disdain" towards all those with PDDs.
I guess that is why I have always refused to put my son in an institution or group home. I suppose that is why I have worked tirelessly to learn his educational rights and fought so hard against insurance companies for better medical care for him. That must be why I am so active in his education, going over his IEPs and looking for areas he isn't progressing in so I can work with him at home to acheive those goals. Surely, that is why I have served as a volunteer in every class he has been in. Certainly, it is why I have acted as a mentor to other parents of newly diagnosed children. It also explains why I send out so many emails to politicians asking for more funding in the areas of supported and assisted living through out all life stages.
Wait a minute. That makes no sense at all! If I hated those on the spectrum then I would have dumped my son off on any one or any agency that would take him. I certainly wouldn't have done any of those other things and I probably would have had my tubes tied so as to not risk having another child on the spectrum.
I guess the person who accused me of hating those with ASD has no idea what they are talking about. Yep...that makes so much more sense.
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About the Author
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- From: mamaelephant
- Name: mamaelephant
- About Me: Hi! I am Mama Elephant and I am both a college student and SAHM to a mischievous teenage son, who happens to have Autism, and an infant daughter. It is a practice in time management. Raising a child with special needs presents challenges disguised as impossibilities as well as rewards beyond the imagination and I write about both.
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Comments (12)
They seem like one of those people who fly off the handle when you don't agree with them.
Don't listen.{{{{{hugs}}}}}}
Blessings to you!!!
From a mom who has walked in your shoes!!!
The people who have said or implied such things are ridiculous. ((HUGS)) to you and for doing what is best for your child. :)
You're right. They don't know what they are talking about. I worked at a therapy center for a few years and I can tell you there wouldn't be a need for some of the classrooms I was in if there were more mothers like you. Thank you for what you have done to help your son and many others.
Don't let the folks at Autisable get you down. Sometimes the commenters can be quite nasty, but you rise above it and you KNOW firsthand what autism is really like.
@mom1945@xanga - Agreed, but please don't dump your issues from one blog to another in order to get support elsewhere. What are we, in high school? Drop the drama, get over it.
Sorry to be blunt.
(covers head while she awaits the hate responses)
No hate respones, because I haven't a clue what you're talking about. Please explain how I'm dumping issues from another blog to this one By telling momeroo that she sounded like a wonderful mom ??? I don't see any connection!
@dandymandie@xanga - Perhaps you are unaware of how many of Xanga's "ish" sites work. As a contributing writer for Momaroo and Autisable, I do not suggest, nominate, or pitch my blog to the "ish" sites. They pull what they find relavent and post it on their sites. I could ask that certain posts not be included on the sites but I did not think to do that with this one because it didn't occur to me that Momaroo would be interested in it.
I don't seek sympathy in this matter. I am quite comfortable in my stance concerning my support for a cure, treatment, adequate medical care, and effective education for my son. I wrote what I did on my own blog and it was pulled to be published here. My own blog is read by other parents of children with ASD and we share many challenges in life. Discussing anti-cure/pro-cure rhetoric is common among parents. If you read what I wrote and saw a cry for sympathy then that isn't my problem.
I suggest that you avoid all front page material on Xanga and many of its "ish" sites if you detest drama. The editors pick what they do because they know it will stir emotions and bring in the readers and comments. Drama, judgemental attitudes, and controversy sell. They aren't here to spread sunshine and happiness.
Best Wishes.
@dandymandie@xanga - I am also confused as to what you are talking about?
@mamaelephant - You have been an inspiration to me, a mother of an autistic boy, and you are a great inspiration for any mom (or dad). *super hug* And you're right, those accusers are wrong and don't know what they are talking about!
Sometimes it seems like those Autisable folks are kind of hostile. I've worked with children with autism and so I'm interested in reading posts on Autisable, but the hostility keeps me away most of the time.