by Mama Pig

I finally got around to registering us for Buddy Walk 2008. For those that have no clue what I am talking about, the annual Buddy Walk is something done nationwide to support Down syndrome. Below is some information that I took from the Down syndrome Association of San Diego.
The Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome. Today, the Buddy Walk program is supported nationally by NDSS and organized at the local level by parent support groups, schools, and other organizations and individuals. Over the past thirteen years, the Buddy Walk program has grown from 17 walks to more than 275 expected in 2008 across the country and around the world. Last year alone, 250,000 people participated in a Buddy Walk! They raised more than $9.5 million to benefit national education, research and advocacy initiatives, as well as local programs. These funds enable NDSS and local groups to offer services that support and enhance the quality of life for individuals with Down syndrome and their families. Since this is Down syndrome Awareness Month, I thought I would share some facts that you might not know. I can tell you, prior to little E, I knew next to nothing about this and am thankful for the information made available to me through various sites. This list of facts was also taken from
dsasdonline.org.
- Down syndrome is the most commonly occurring chromosomal abnormality. One in every 800 to 1,000 babies is born with Down syndrome.
- There are more than 350,000 people living with Down syndrome in the United States.
- The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80 percent of children with Down syndrome are born to women under 35 years of age.
- People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.
- All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
- Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.
So, I realize you didn't come here for a lesson in Down syndrome, but I feel strongly that this information is something we could all benefit in knowing.
Do you know anyone with Down Syndrome?
Comments (5)
hooray! yes, my little bro has downs. he was born when my mom was 36 & i was 16. he's one of the best things that ever happened in my life. he just graduated high school where he was totally mainstreamed. when he accepted his diploma the ENTIRE auditorium erupted in applause & cheers. my parents had a long hard fight to keep him mainstreamed but it's a really good thing they did. my mom was an elementary school teacher for 15 years before he was born & she knew what the school system was like for disabled kids. she knew he'd never need to know algebra or who the first president of the US was, but he DID need to know how to interact with peers & have appropriate social skills. so she fought for years to keep him in a regular classroom for as long as possible & he really has benefited from it. his whole class loved him & looked out for him, he went to the prom & got voted to be 'most likely to make you smile' in his year book. heck, he was WAY more popular than i was in high school! because of the downs he can actually stay in school until he's 21. so my parents are keeping him in because he likes it & it's good for him. now we're just at the point where we've got to figure out what to do when he can't be in school any more. my parents can't quit either of their jobs, so we're not sure what we're going to do at that point. that's going to be our next big hurtle.
@Battie@xanga -
That's such a wonderful story! My younger sister also has downs and she went to my high school (and was more popular than me) as well. I can't say that we've always been "best friends", but she and I definitely have a connection-- we share the same birthday exactly two years apart!
Anyway, she's 21 now, and she is still currently in school as well. I haven't heard of her education having to stop just at 21. She's actually going to be taking life skill classes at our local community college next year (she wanted to stay with her current classmates this year, even though she had the option to start now). Maybe you could see if there is a program similar to that near your area? It's pretty awesome... through the classes she's taken, she got a part time job at an arts and craft store near our house.
Living with my sister has been such a blessing in disguise. I know first hand how difficult raising a child with downs syndrome can be-- I pretty much helped raise my sister myself since my parents worked so often to support us-- but kids with downs are some of the most heart warming kids I've ever been around. I TA'd for my sister's special ed class one year when I was in high school, and it was honestly one of the best experiences I've ever had. :)
@dnav@xanga - i haven't heard of the life skill classes but i'm definitely going to look into that! thanks! that's something he'd really enjoy. and yes, i too was pretty much my bro's 2nd mommy. my mom went through some pretty rough post-partum after he was born & i was a teen so i was old enough to take over when she needed me to. which was often & i never ever minded. i rocked him to sleep in my arms every night. and to this day, even though we're 16 years apart in age, we're really close. him & my daughter are the loves of my life.
i really do believe that downs kids are angels come down to earth to teach the rest of us compassion, love and acceptance.
Hi I have a little angle Named Marissa with DS She 2yr old , And Iam hear to tell you she's the greatest thing in my life,Also my first baby sometimes I think she was given to me from up above Because growing up with my best friend her sister has DS never in my wildest dreams i though My frist Child would Have DS so it was no surprise Even tho I had no idea Till 10 hours after she was born that She Had it.Thank you God.
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