Wednesday, 23 July 2008

  • A Time to Mourn

    Mama Penguinby Mama Penguin

    Yesterday morning, after the radiothon, we visited the Saint Francis EOPC (NICU) as we always do when we are at the hospital.  It was our home for 3 1/2 months, and there are still many people there who will always be special to us.  People who took care of our daughters, sustained their lives.  People who took care of me and Papa when we felt as though we couldn't handle anymore.  People who helped us gain the confidence we needed to bring our daughters home.

    Although I will always have good memories of the EOPC, it will also always stir those that are bad.  It's usually the smell that gets me.  It's hard to describe, but there is a smell about the NICU that makes the hair on the back of my neck stand on end.  It makes my heart race, and I have to fight the tears that well up in my eyes.

    Yesterday morning was no exception.  Walking through the elevator doors, it hit me.  A wave of memories, both good and bad, that only something like the five senses can trigger.  For some reason, this particular visit flooded me with a feeling that I had long since pushed aside.  It reminded me of something I felt the day Papa and I came home from the hospital...without our daughters.  Rather, it reminded me of something I no longer felt.  I can vividly remember walking down the hallway in our house, headed for the restroom.  I stopped, placed my hand of my now vacant belly, and mourned the loss of my pregnancy.  I mourned the three months that I was robbed of, that C & M were robbed of.  I mourned the fact that I would never again feel them squirming in my belly.  I mourned the fact that they were taken from me immediately after delivery and rushed to the NICU.  I mourned the fact that I had left the hospital without them and without any certainty that they would come home in the future.

    It's not something that many women will understand, and I thank God for that.  No mother should feel that way.  Part of me felt guilty for mourning an intangible loss.  At least our daughters were alive, though we had no idea for how long.

    In the weeks that followed, many very well-meaning, and at times, ignorant, people offered me solace and advice.  None of them helped.  Someone close to me tried to cheer me up by confiding that the last three months of pregnancy were really hard, so at least I had missed that discomfort.  Somehow, I didn't find solace in that.  Another woman, out of ignorance, responded that I was lucky to have had such small babies after I told her the girls were 1 pound 13 ounces and 2 pounds 2 ounces, respectively, when they were born.  She then continued on with a story about a niece of hers that had delivered a 10 pound baby.  How terrible for her to have had a healthy, albeit big, baby.

    Now, I know most of these people had good intentions and most likely walked away not knowing how they had hurt me.  I know that ours was a situation that could easily be intimidating, leaving someone who only wishes to help, with little to say.  From my perspective, though, I would have much preferred those people had simply chosen not to say anything at all.  There really isn't much you can say to comfort someone who doesn't know if their children are going to live or die.  Instead, express your concern or sympathy with a heartfelt gesture (food, cards, flowers) or a hug.  I'm aware that people respond differently to a crisis.  I can't say what works for everyone, just what worked for me.

    Have you ever said something to someone that might have unintentionally been insensitive?  Has someone said something to you?  How do you typically handle talking with someone who is going through a crisis?

Comments (14)

  • jaded_maudlin@xanga

    I'm so sorry...
    People can be very insensitive sometimes, even when they have the best of intentions...

  • trinity_heart@xanga

    Even in every day conversation, I put my foot in my mouth. In times of mourning and despair, I keep my big mouth shut. Instead, I offer hugs, a shoulder, a listening ear, and lots of home-cooked meals. I'll run errands, care for the pets, anything that might help their peace of mind.


    I'm so sorry to hear that your babies are in NICU. A friend of mine recently welcomed a 3 lb 1 oz baby who is currently in NICU. No one should ever go through such a terrible thing. My thoughts and prayers are with you.

  • mamapenguin

    @trinity_heart@xanga - Thank you so much.  Actually, our daughters were born in '06.  They are now happy, healthy two-year-old's.  We are very active in supporting the Children's Hospital, so we were just visiting to do a live interview for the annual radiothon.  It's been two years since our NICU stay, but like I said, visiting still brings back a lot of good and bad memories.  I hope your friend's baby is doing well and gets to go home soon.

  • grandmakitty@xanga

    Our daughter delivered a son at 26 weeks (that was 16 years ago and he's fine). There was another couple in the NICU with a full-term son with a fatally damaged liver. I remember asking the mother how she could possibly handle something so tragic, and she just looked at me and said quietly, "I don't remember anyone giving us a choice." I wanted to die on the spot. I learned a huge lesson that day.

  • a_defiantbeauty_2@xanga

    When my 7 month old foster son that I was 3 days from adopting died unexpectedly in my home (I found him) my foster agency's director called with these condolences, "What a bummer!" and then proceded to tell me how expensive a funeral would cost and how we should just let the state handle it.  Well, I did, the state offered $3500 to cover a portion of the costs---this covered all of the costs.  I told the agency's director and owner that there was no way MY child would NOT be given a proper burial.  I have found that when people don't know what to say, they are very insensitive.  Unfortunately, men tend to stumble over their words more in crisis and women just shut up!


    8 months later my sons "proper" headstone was placed bearing my name as his mother and what would have been his given name at his adoption.  This was placed yesterday.

  • TiRocKiinPiinK@xanga

    I'm sorry for all of the insensitive things that were said. I tend to just say I'm sorry and things of that nature & offer help. I don't try to understand what I haven't been through myself. My father was killed in the Persian Gulf War and I was about 3 so I've always heard insensitive things. I know most of the people didn't mean to be insensitive, but they were trying to understand and make me feel better. People think saying "Time heals" makes one feel better, well it doesn't. At the moment, I am still hurting and always will, it is a loss.

  • EclipticStrike@xanga

    I've said inadvertent insensitive things before.

    I've learned that, for me, the best thing is to shut up and put a hand on the shoulder.

  • javamommy@xanga

    i know oh too well what you're talking about.one of the first things my mom said to me after i delivered my 4th child(who died an hour after birth) was you dont even look pregnant anymore you're so lucky,yes my mom is one of those that does not do well in a crisis.

  • BraddyRants@xanga

    I try to avoid mentioning anything about the rough spot, perhaps just offering my support by means of a hug if they seem to need it. This is mostly because I remember some things sort of like you mentioned; people meant well, but it just hurt. I am no mother, I am a dad however, and I have one son.. but i HAD a daughter. she died at two months old of a congenital heart defect, and those two months were spent knowing that she probably wouldnt live (sometimes people say "at least you had those 2 months"... but did we really have them, if they were spent in fear, and already mourning a death that could come at any time?). It was a horrible time, and the smallest things would upset me. I don't claim to understand exactly what you mean, I don't think anybody can fully understand anybody elses situation without having lived that exact life and that exact moment (so, impossible) but at the very least I learned how people might be hurt by attempts at comfort, and so I try not to say much of anything besides giving an ear to listen, and showing them, silently, that I care.
    that's enough rambling from me. <3 I wish you the best.

  • kim@xanga

    A lot of people say insensitive things and many of them have no idea. While these things can sound so hurtful, I think a person needs to look at the intent behind the comment and not get too upset at the person for trying to help.

    That said, I think it's always best to tell the person you are there if they need anything, offer a hug or food, etc. and leave it at that.

  • hannahtan528@xanga

    I'm so sorry to hear about your baby. I just hope, that you feel better soon. No one really knows how another feels, unless they also went threw the same thing in life.

  • mamaturtle

    I revisited the NICU one time, when ds1 was a year old. The smells, sounds, faces of the nurses - I started shaking! Everything had come flooding back and I wasn't ready to deal with it. After the nurses were done fawning over ds I walked pretty briskly to get off that floor.

  • guildelf9@xanga

    I'm sorry. I just listen when people have problems, unless I can definately help.

  • asnethen

    I could have written your post.  My son was in the EOPC NICU too.  The smells, memories, etc... When we have been back we have not gone in - just looked in the window.  It was so surreal.  I think about it EVERY day.  My son is now 20 months old.

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